jewelry and possibly buy it afterwards for an affordable monthly membership
fee. If you want to read more about this
you can also click here which is my first post about Rocksbox. **Please be advised that I was given a free three month membership to review Rocksbox products however all opinions are my own.
Fibrosis Awareness month, it’s also the reason why I’m wearing purple in this
post since just like Epilepsy Awareness we share the purple ribbon. If you’ve been following this blog since day
one you may have come across a post almost two years ago about my friend
Allison. If you didn’t you can read it here. Allison was diagnosed with Cystic
Fibrosis at the young age of two months old.
If you don’t know what CF is I’ve provided you a few key points from
Allison’s first post here on the blog. If you don’t want to read through all of that at least scroll to the bottom underneath her picture for the important stuff!
recessive genetic disorder that mainly affects the lungs, pancreas, liver, and
intestines. It is characterized by abnormal transportation of chloride and
sodium across the CFTR gene, which results in the inability to break down mucus
in the body, which in turn leads to thick, sticky secretions. This mucus then
“clogs” the internal organs, which most commonly leads to frequent
respiratory infections, which can lead to pneumonia. If left untreated or
treated ineffectively due to drug sensitivities or a bacterial infection that
is insusceptible to antibiotics, the infection can then become fatal. The
majority of deaths related to cystic fibrosis are those who succumb to severe
which gets progressively worse with age, causing the affected’s lung capacity
to lessen over time, making it more and more difficult to breathe on their own.
Some patients are healthier than others, and there are different levels of
severity, but it is not uncommon for a person with CF to rely on an oxygen
supply as they get older.
digestive system: that sticky mucus blocks ducts in the digestive organs that
are necessary to transport specific enzymes throughout the body to aid in the
breakdown of food and the absorption of nutrients. This is why most people with
cystic fibrosis are very thin, anemic, and just overall deficient in almost
every vitamin; in other words, malnourished. Their bodies can’t absorb everything
they need to stay healthy like average Joe’s body does. To help keep nutrition
up, CF patients are given a supplementary pancreatic enzyme to make up for the
lack of naturally-occurring enzymes in their bodies, which needs to be taken
with food. And not once a day, either. It’s every. Time. They. Eat. Anything.
These enzymes are usually taken alongside high doses of vitamins and
supplements, which are usually only taken once or twice daily, to ensure the
absorption of all the nutrients their bodies can get.
CF patient’s diet is usually very high-calorie, high-fat, and high-protein.
Most CF patients are conditioned since a young age to never put the fork down,
because that’s how quickly they can lose weight. So, for a Cystic, they average
between 3-5 meals per day, plus whatever they snack on in between. Now, figure
about 5 enzyme pills per meal, and about 3 for snacks, give-or-take, plus
vitamins and other assorted pills needed for CFRD (cystic fibrosis related
diabetes), and other digestive issues. Plus add the therapy sessions on top of
that, that’s a lot of medications to squeeze into one day!
bringing this up again if I already talked about it once before. It’s taken Allison a lot to finally start a
go fund me page. She was so against it
for the longest time but her bills finally caught up with her. She needs to raise money in order to be able
to pay her medical bills. If you have
even a dollar to give her she would greatly appreciate it. I’m working on getting an update post for all
of you from Allison because since the above post I know her lung capacity has
dropped. When she wrote this post she
was at 50% percent. Now it’s a lot
worse. I do however give her props for
being a normal 20 something year old minus all of the medications she has to
take and all the food she eats.
Everyone, this is Allison. This fighter has Cystic Fibrosis and she needs your help to raise some money to pay off medical bills. If you would like to donate, her Go Fund Me link is here. She explains more about her situation on that page, so if you read it and think it’s worth a share please do! She’s been in my life since my sophomore year of high school (over ten years ago, but who’s counting) and it breaks my heart to see her going through such tough times. I love you Allison!